ME/CFS Can Affect Anyone
Millions of people worldwide are affected by Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). Yet the causes, diagnostic markers, progression, and FDA-approved treatments remain unknown. The shared vision of the ME/CFS Collaborative Research Network (ME/CFSnet) is to encourage collaborative research in partnership with individuals and advocacy groups to understand the disease and develop better diagnosis and treatment.
EVENT
ME/CFS Exchange Webinar Series Launches October 8
October 8, 2026
NINDS, in partnership with MECFSnet, is launching the ME/CFS Exchange Webinar Series. The quarterly series will bring together researchers and experts from diverse disciplines to share insights, foster collaboration, and advance ME/CFS research.
Seminar 1, Persistence of Post-Acute Infection Symptoms will convene October 8 from 1-3pm ET. Register today!
Take Me ThereEVENT
From Mechanisms to Medicine Workshop
September 23, 2026
This NIH workshop brings together leading researchers, clinicians, and people with lived experience (PWLEs) to advance collective understanding of complex multi-system disorders. The workshop will be held September 23-24 at the Neuroscience Center Conference Space at 6001 Executive Blvd in North Bethesda, MD. Register to attend in person or virtually.
Take Me ThereNEWS
New Publication! MECFSnet partners at ICanCME offer new insight into Long COVID and post-exertional cognitive dysfunction.
August 10, 2026
MECFSnet partners at ICanCME offer new insight into Long COVID and post-exertional cognitive dysfunction.
Take Me ThereThese institutions are working together as the ME/CFS Research Network.
Visit the CDC to learn more about ME/CFS.
Collaboration Drives Progress
Investigators, health care providers, and advocates are collaborating across the Research Network to drive progress in understanding ME/CFS. Together, we can advance discoveries to improve the lives of members of the ME/CFS community.
Grants that fund MECFSnet are managed by the National Institutes of Health (NIH) National Institute of Allergy and Infectious Diseases and the National Institute of Neurological Disorders and Stroke. This website was supported by a grant from NIH, grant #U24-NS-105535.
Website design and development by RTI International. RTI is a registered trademark and trade name of Research Triangle Institute. The RTI logo is a registered trademark of Research Triangle Institute.
What is ME/CFS?
Myalgic Encephalomyelitis (ME), also referred to as Chronic Fatigue Syndrome (CFS), is a multi-system disease that causes dysfunction of the neurological, immune, endocrine, and energy metabolism systems.
