ME/CFS Can Affect Anyone
Millions of people worldwide are affected by Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). Yet the causes, diagnostic markers, progression, and FDA-approved treatments remain unknown. The shared vision of the ME/CFS Collaborative Research Network (ME/CFSnet) is to encourage collaborative research in partnership with individuals and advocacy groups to understand the disease and develop better diagnosis and treatment.
EVENT
From Mechanisms to Medicine Workshop
September 23, 2026
This NIH workshop brings together leading researchers, clinicians, and people with lived experience (PWLEs) to advance collective understanding of complex multi-system disorders. The workshop will be held September 23-24 at the Neuroscience Center Conference Space at 6001 Executive Blvd in North Bethesda, MD. Register to attend in person or virtually.
Take Me ThereNEWS
New State-by-State Resource Directory from Bateman Horne
July 24, 2026
New state-by-state resource directory from Bateman Horne is available to help people living with ME/CFS and other chronic illnesses. Find trusted support across the United States. Download this free resource today!
Take Me ThereNEWS
OMF News: Preliminary Results from the CTN Lite Patient & Caregiver Survey
July 15, 2026
Preliminary results from the CTN (Clinical Trial Network) Lite Patient & Caregiver Survey are now available. These results offer early insight into the treatment research priorities identified by the ME/CFS community. View the webinar recording to learn more.
Take Me ThereThese institutions are working together as the ME/CFS Research Network.
Visit the CDC to learn more about ME/CFS.
Collaboration Drives Progress
Investigators, health care providers, and advocates are collaborating across the Research Network to drive progress in understanding ME/CFS. Together, we can advance discoveries to improve the lives of members of the ME/CFS community.
Grants that fund MECFSnet are managed by the National Institutes of Health (NIH) National Institute of Allergy and Infectious Diseases and the National Institute of Neurological Disorders and Stroke. This website was supported by a grant from NIH, grant #U24-NS-105535.
Website design and development by RTI International. RTI is a registered trademark and trade name of Research Triangle Institute. The RTI logo is a registered trademark of Research Triangle Institute.
What is ME/CFS?
Myalgic Encephalomyelitis (ME), also referred to as Chronic Fatigue Syndrome (CFS), is a multi-system disease that causes dysfunction of the neurological, immune, endocrine, and energy metabolism systems.
